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Gratitude II & Sickle Cell
The People Who Show Up One thing I haven’t talked about enough is how much I appreciate the people who support me. The people that matter the most to me. Family and friends. I talk a lot about Sickle Cell Disease. The pain. The advocacy. The work. The mission. But behind all of it, there are people. Real people who…
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Gratitude, Privilege & Sickle Cell
I’m tired. Like, really tired. The kind of tired that doesn’t go away after one good night’s sleep. My body is currently sending me the bill for three days of showing up fully every session, every conversation, every handshake in Lagos heat and humidity, running on adrenaline and purpose. Warriors will know exactly what I mean. But I’m also more…
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Work, Life & Sickle Cell
Clocking In While Your Body Clocks Out: There is a specific kind of exhaustion that only SCD Warriors know. It is not the tiredness that comes from a long day at the office, or a hard workout, or a late night. It is the kind of exhaustion that lives in your bones. The kind that shows up uninvited on a…
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Work & Sickle Cell (Part 2): What Employers Still Don’t Understand
This post has been sitting in my drafts for months. For so long that the last time I posted it I was freelancing and working completely remotely. but we still need to speak on this topic. I recently got employed at this great marketing and advertising agency — shout-out to my brother for the lob. A conversation took place one…
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Work & Sickle Cell (Part 1): From the Workplace to Nairobi
Last week, I had the privilege of attending the St. Jude Global Sub-Saharan Africa Regional Meeting in Nairobi, representing Raremark Foundation. It was a week of intense learning—strategies, systems, science—but also one that demanded more from me physically and emotionally than I had anticipated. The altitude difference hit harder than expected. Nairobi sits nearly 1,800 meters above sea level, and…
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The Weight of April: Heartbreak and Hospital Walls (Loss, Love, and Shared Struggle)
April. It arrived this year shrouded in a heavy cloak of sorrow. Even before the sterile scent of the hospital filled the air, my heart was already aching, fractured by a recent, intense breakup that had left me feeling adrift and emotionally exposed. It was a raw, consuming pain that seemed to dim the vibrancy of everything around me. But…
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Loss, Grief & Sickle Cell
The 2nd of September 2023 will be a day I will never forget for the rest of my life! The day I lost A best friend. Now I have 3 people left in my life that I can call my best friend, but she was a special kind of best friend because she was my first friend with Sickle Cell…
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Life w/ SC update #3 (Hi Nai 🙃)
I am back with a new life update on my experience living with Sickle Cell. It only took 5 months this time to experience a pain crisis worthy enough for an update, so here we go! Unlike last year, this year I had a good start to the year, I was healthy! Work was good, my social life was good…
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I Just Want To Belong…
imposter syndrome as a warrior Sometimes I feel like an imposter with Sickle Cell. When I was younger and would have sudden pain crises after being perfectly fine playing, people would say I was pretending. There was never a way to prove it to them, but if they truly knew me then they would know that I would never dream of faking that type…
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Life w/ SC update #2 (Whyyy Kla!?)
Wow it has been a while since I last posted anything on this blog, since 1st of September which is about 8 months, but what has happened in the past 8 months makes it easily feel like a year or longer. Let see, what has happened in the past 8 months; I celebrated my 30th birthday on 5th of December,…
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Shame & Sickle Cell 